Amanda Dickinson

Well it finally happened. The other day I had a first that I knew would eventually happen, it was just a matter of time. While leaving an appointment a gentlemen in the elevator with us looked over at Kaleb and I watched the recognition in his face which followed with, “Oh, bless you guys.” Even though I knew something like this would eventually happen I was left unsure of how to respond. Part of the gentleman’s statement might have been geared towards the oxygen and monitor with Kaleb. Which depending on the extent of his knowledge could have even been part of what he meant, knowing that those with Trisomy 21 are more prone to health issues and are evident with Kaleb’s extra accessories. Which in reality the oxygen and monitor have more to do with his very premature birth having been born at 28 weeks then with Down syndrome. We don’t always go into the full birth story, NICU stay, and medical file which are all a part of Kaleb’s story with every person we meet. I really do not believ

Kaleb is six months old today. As many parents will say, I can’t believe it’s already been six months. Now that half a year has passed since that week at the end of August and Kaleb’s birth on September 1st, I’ve found myself looking back at that time. I admit it’s not hard that period seems as if every detail and moment is etched forever in my memory. I admit tonight has been a little bit rough. Kaleb has been a little fussy and requiring a few more extra cuddles than usual. While it may be tough with a three year old who also wants his Momma and TJ on his way back from a golf tournament. I find myself while having to keep from getting frustrated also comparing the difference six months can make.  Six months ago Kaleb’s future was very uncertain. Since hearing that we would be having a very small preemie we had no idea what to expect. I feared for my son. My heart was battling conflicting emotions. As they wheeled me into the operating room I kept my hands on my belly not ready to not