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My kid may not look quite like your kid...

My kid may not look quite like your kid...

Where your kid has on baseball socks and cleats, my kid has on AFO braces and shoes wide enough to fit the braces.

Where your kid is running around kicking dust up in the field or running the bases, my kid has his walker.
While your kid looks adorable with their cute helmet decal, my kid is getting double takes when people notice features that appear “different.”

While your kid is waving and talking to you on the sidelines, my kid is turning to sign to me as I prepare to help him bat.

Those are some of the ways our kids differ, but let me tell you how our kids are the same. Our kids both want to go out there, play, and have fun.

Our kids both look to us as parents to make sure we are watching, that we are proud of them.

So my kid might not be quite like your kid and that’s okay.

So while you see my son not walking and you notice features that give clues to his diagnosis of Down syndrome, know that in many ways our kids are still the same. Bot…
Recent posts

Preemie Mom: Grief from pregnancy and delivery

I don’t have baby fever. Nope, not at all. Instead I’m the person tagging my husband on the story of the vasectomy celebration thrown by a wife for her husband. Complete with the snip snip hooray cake.

However, when I see a big pregnant belly or hear of a mom talking about packing her hospital bag, the twinges come. This is when the twinges of grief and dare I say envy come in every now and then.

I’m a preemie mom. As preemie mom I lost out on the last three months of pregnancy. I just got to the third trimester in time to have my pregnancy unexpectedly come to an end. Suddenly, gone was my time to spend with my oldest as I savored the last little bit of him as my only little boy, my baby. Gone was the time of planning and prepping the nursery. And yes, gone was the time of sleepless nights, crazy feeling hiccups, heart burn, and aches and pains. Basically the unpleasant but proud markers of pregnancy.

I lost out on so much. I didn’t get to post to social media asking for everyone’s h…

I love you more than a marshmallow

“Momma, I actually love you more than a marshmallow.”

This was what Kaden said to me as he got into his pajamas and gave me a big hug last night. This expression pretty much sums up my night last night. A chaotic night over a marshmallow. However, once again God used Kaden to show me my own lessons that I also struggle with in my life and my relationship with Him.

Kaden is a picky eater. Okay, that may be an understatement. In fact last month we told him that his four favorite meals were off limits. That he had to learn to try other foods and eat different things. He has done better but it’s still a constant battle.

Tonight he wanted dessert after dinner. He wanted a jumbo marshmallow. (Isn’t that what everyone selects for dessert???) After the rest of us were finished he still hasn’t eaten that much and had entered the negotiation stage. The can I get it down from eating everything to a certain number of bites stage. After another long while of battling and it getting closer to time for…

SPANX and Parenting

I will never forget when I went to an interview almost eight years ago. I felt uncomfortable in the dress I was wearing so I got some shapewear. (The 33 year old me who has since housed and birthed two tiny humans, now rolls my eyes at the 25 year old me. Shapewear. 🙄 Oh hun, just wait a few years...). I digress... So 25 year old me goes to this interview attempting to put my best face, or waist, forward.

However, while sitting in the chair they had led me to I waited for the interviewer to arrive. I looked down and to my horror my shapewear had slid down and was now showing underneath my dress. I discreetly attempted to push it back up while appearing to be a professional lady simply waiting for the interview. At this point in time I was listing to myself all the reasons why I should have been comfortable to go as me. That I didn’t need shapewear. Needless to say there wasn’t a way to pull it up to stay. And of course they wanted to give a tour and I spent the whole dang time wonderi…

Inclusion: Live Your Best Life

What is inclusion? This is one of the first questions I always ask my Adapted Physical Activity class. The dictionary’s definition states the act of being included. In special education this term means opportunities for students with disabilities to learn alongside typically developing peers in the general education classroom.
Then again, for some, the term can bring on feelings of that constant parental guilt. Worry or guilt that they aren’t doing enough or doing the right thing. For example, that if they don’t work to have their child in the general education classroom that they aren’t doing the right thing. Even though they know their child and feel it would not be in their best interest for certain classes. No matter the IEP’s percentage of time in the general education classroom, inclusion goes well beyond the school walls. It is about individuals being viewed as a valued, accepted, and yes, included member of society.
I’m not one to use popular expressions and sayings. Probabl…

Our Stories

Our Stories: Reflections of the 2018 DSDN Rockin' Mom Retreat
After last year’s DSDN Rockin’ Mom retreat I wrote about the power of our hands. (Linked here). This year I leave with the importance of stories. Our stories. Everyone who has heard Bethany Van Delft's story was very excited to hear from her. Even though I was two years removed from our diagnosis and therefore past the initial processing of our diagnosis and the accompanying emotions, it brought me to tears when I listened to her story.

Every time I share our story or hear a story that I connect with at such an intense level it brings a sense of release. Sometimes it's those stories of our tough times, times when we feel so alone, that people relate to the most. That when we bring ourselves to share, we realize how truly similar we are to what others have felt and we connect to those stories. Those stories can bond us. They can change us. They can empower us.

At the retreat Bethany spoke about the events surround…

The Fan

These are all fans. Some prettier than others or fancier than others. But they are all fans and all get the job done. When I think back on August 27th, 2015 what I remember is a fan, this fan. Just a simple plate and tongue depressor taped together. The creator even went one step further and wrote “fan” on it to make sure everyone knew what it was. Sometimes in life we get handed a life isn’t as pretty or fancy as we thought or dreamed. But then sometimes when we stop to take a good look at our life, it is still a life we love, a life we dreamed of.


We were at the lab to have my blood drawn for the MaterniT21 test to test for Down syndrome when I found this fan. TJ and I loved it and it diffused the situation. In fact we found ourselves taking a picture of it. I still remember TJ using it to fan the nurse who was having a hot flash while she drew my blood. This all happening while I worked hard to not think or even consider the possibility of what they were checking for. I wanted to th…