I haven’t written many
blog posts in the past year. One, I struggled with finding the time. I know
shocker right with two young children, career, and doctorate. The other reason
though is I was dealing with an internal battle. I struggled with the line
between upbeat and positive posts and how much to share of the harder and
tougher posts. Another way to compare it, would be unicorns or also sometimes
referred to as unicorn farts. Sure, I’ve shared my fair share of poop stories,
after all I am the mother to two boys. But I’m not sure I’ve ever written about
farts. However, the unicorn holds a special place in many of my fellow Rockin’
moms. If you want to read of another blog post about the significance of the
unicorn click here. The following is my explanation.
To explain, right after Kaleb’s diagnosis I would get
online and I would find many uplifting and inspirational stories of parents
talking about how quickly they came to terms with a Down syndrome diagnosis,
how it is the greatest thing in the world, and everything is essentially
rainbows and unicorns. Some, more eloquently refer to it as unicorn farts. I liked these stories, I wanted desperately to
believe them, I held on to this hope that they were true, but I wasn’t sold. Others
like I was in the beginning and especially others outside of the Down syndrome
adventure, have a hard time believing this and view it as people who spout off
this nonsense must either be lying or in denial. In other words, these unicorn
farts are just that, simply nonsense and a nice spin on Down syndrome. In their
mind, they believe that these unicorn farts, call them or color them what you
want, but in the end it all comes off crap.
Trust me, there is crap involved. A lot of it being
our own insecurities, the world’s perception of different, mixed in with the
chance of increased medical issues, longer wait times for milestones, and the
need for a little more patience. I was also afraid that by sharing some of the
hard parts of Down syndrome and his other health issues it would highlight the
difficulties and not the amazing, albeit ornery, little boy he is. Because most
parents will tell you that that extra chromosome will teach them so many extra
life lessons that they wouldn’t have learned any other way. So many do this primarily
sharing the sunshine, rainbows, and unicorns; myself included.
I began to realize my posts were becoming all
sunshine, rainbows, and unicorns. I saw it. I also felt bad, because I realized
I began to wait to write until I could put the positive to it. Then by life
being life and being hard, I didn’t write. By doing this I wasn’t sharing the
whole story. I believe there needs to be a combination. In fact what good is
the positives and good, if not for the hard parts? It really started being put
on my heart that in order to really share our journey that I needed to get back
to sharing all of it. I believe there is beautiful in the messes of life. That
it is in the mess of life that we often find life’s messages. You can’t even
spell messages without the word mess in it. No mess, no message.
This is me getting back to writing and sharing our
stories. So here are life’s MESSages. The
good, the bad, the ugly. The unicorns and the unicorn farts. I will share the times
that seem all sunshine, rainbows, and unicorns farts; as well as the days those
unicorn farts are more stinky than glittery.
(This picture just made me laugh and I had to share). 😉
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