Skip to main content

Lessons from a 5 month and 3 year old

Kaleb continues to do well. The past two weeks PT (physical therapist) and OT (occupational therapist) have bragged on Kaleb and how well he is doing. Some of these progressions include how well he is raising up on his arms to raise his head, overall head control, reaching midline, attempting to grasp at objects, tracking with his eyes, interact, and others. On his 5 month birthday he "accidentally" rolled over from his stomach to his back. It scared him and he had no idea what he did. We Right now we continue to hold our breathe and pray that we (especially Kaleb) stay healthy and all of the colds and other illnesses stay away. 

Specialist appointments continue to be a norm for us and keep us still very acquainted with the trek between Bartlesville and Tulsa. This week we will go back to the audiologist and next week the pulmonologist. So it is safe to say Kaleb continues to teach me parenting and life from a new perspective. I'll be the first to admit how easy it is to "mompete" (compete and compare myself against other moms). Of course social media and especially Pinterest make it easy to do. At times it can make you feel pretty good about yourself and at other times very discouraged and like you just can't measure up. I'm not sure why we do this, it's not fair to us as parents or our children. 

The other night Kaden and I were reading a book before bed. He was upset that Kaleb fell asleep before they could read their two bed time books together so he had to be content with reading with Momma instead. While we were reading the book I Love You Through and Through, I noticed he kept talking about the teddy bear. To be honest in the three years that we have had the book I never gave the teddy bear a second thought. To me the book is all about the little boy. To Kaden he thought it was about the teddy bear (he loves his stuffed animals). He showed me the book from another side, another perspective. That has been Kaleb in my life. He has shown me a different perspective, another view of parenting and life. He has shown me not to get so caught up with "the rules" or how others are doing.

Kaleb has come out of the womb saying that he does not follow anyone's rule book and is writing his own. I can't get wrapped up in the timeline of hitting milestones or trying to measure him up against others. He has and continues to teach me to just step back and simply enjoy and be grateful for him. To enjoy baby snuggles,that yes come with a few more wires, and to celebrate each and every achievement with him. After receiving the birth diagnosis of Down syndrome someone told me that each milestone is that much sweeter once they reach it. Already at his young age I'm realizing how true this this between his preemie battles to ds. It has allowed me to view parenting from a new perspective, that it is not about a parenting measuring stick. I work to continue to simply cherish him and experience life from a new perspective. 


Comments

Popular posts from this blog

My letter to Alex Gordon

Alex, I wanted to share a few pictures with you that show why I'm writing to thank you. You see my three year old, Kaden, knows more about baseball and the Royals than many adults I know. He loves as he would put it "all of the Royals" but without a doubt, without any hesitation when asked who is his favorite player is his answer is always one player; you.  I'm not kidding when I say Gordo was one of his first words. In fact anything baseball for the longest time was called Gordo. I'm not exactly sure why he took such a liking to you. I joke it's because his first ever game at the K and you hit a grand slam when he was not even a year old. For what ever reason he adores you. He even has a little Gordo plush doll that he likes to take everywhere.  This past year has been the toughest year for our family. Our second son, Kaleb, was born 12 weeks early at 2lb 2oz. We also learned of his diagnosis of Down syndrome two days after his birth. He spent

Welcome to Village Rockin Mom

They say it takes a village to raise kids. When trying for and planning for kids I never imagined my village would include so many medical professionals. I also could not have pictured a group of women, most of which I have never met, who I would feel so connected with and who would play such a big part in my support system. This group of women who call themselves Rockin Moms. One day while sitting in the NICU I posted in a Facebook preemie group about how lonely the NICU journey could be and doubly for a parent with not only a very premature baby, but with a baby who also happens to have Down syndrome. I was about to receive my first lesson on just how not lonely it was. A mother told me about the organization called DSDN (Down Syndrome Diagnosis Network) who has these Facebook groups. The full name of the group is Mothers of a child Rockin an extra chromosome. Groups and group members commonly referred to as Rockin Moms. By the end of the day I was a part of a community of moms tha

Six Months Later

Kaleb is six months old today. As many parents will say, I can’t believe it’s already been six months. Now that half a year has passed since that week at the end of August and Kaleb’s birth on September 1st, I’ve found myself looking back at that time. I admit it’s not hard that period seems as if every detail and moment is etched forever in my memory. I admit tonight has been a little bit rough. Kaleb has been a little fussy and requiring a few more extra cuddles than usual. While it may be tough with a three year old who also wants his Momma and TJ on his way back from a golf tournament. I find myself while having to keep from getting frustrated also comparing the difference six months can make.  Six months ago Kaleb’s future was very uncertain. Since hearing that we would be having a very small preemie we had no idea what to expect. I feared for my son. My heart was battling conflicting emotions. As they wheeled me into the operating room I kept my hands on my belly not ready to not